Hemophilia World – April 2011

Hemophilia World – April 2011

The April 2011 issue of the newsletter is now available on our website. Click on the following link to view Hemophilia World in PDF format: http://www.wfh.org/2/docs/Publications/Hemophilia_World/HW_April2011_EN.pdf

 

Death of Medicare

Tuesday, House Budget Committee Chairman Paul Ryan (WI-01) announced the Republican’s budget proposal. It is unbelievably bad – literally. The GOP budget not only repeals the new health care law it eliminates Medicare and Medicaid as we know it.1

Fight for these life saving programs today. Call you Member of Congress and tell them to vote NO on the Republican’s extremist budget.

The Republican’s proposal gives millionaires huge tax breaks while seniors and hard-working families pay more for health care and get less coverage. Ryan’s plan would radically undermine the economic security of America’s middle class. It helps Wall Street-run health insurance companies make record-breaking profits and pay their CEOs outrageous sums to deny people the care they paid for and need.2

Nowhere in the Republican plan is there any shared sacrifice. There’s no fairness. The big corporations and super-rich aren’t asked to pitch in. Instead they get even richer. This budget changes the rules and reshapes this country in a breathtakingly dangerous way.

This budget would eviscerated programs that everyone in this country depend on. Republicans are attacking every single one of us.3

The GOP’s budget breaks America’s most basic promise: That if you work hard and play by the rules, you can take care of your family and retire with peace of mind.4 Call Congress today.

In Solidarity,

Melinda Gibson

1. http://www.americanprogress.org/issues/2011/04/ryan_budget_preview.html
2. http://www.bloomberg.com/news/2011-04-06/ryan-s-budget-proposal-would-aid-insurers-a-top-source-of-campaign-cash.html
3. http://www.healthcare.gov/law/provisions/billofright/patient_bill_of_rights.html
4. http://www.huffingtonpost.com/ethan-rome/republican-budget-plan-de_b_845256.html

 

 

Special Challenge for CNY Bleeding Disorders Association

You can help CNY Bleeding Disorders Association every time you search or shop–no cost to you.

http://www.igive.com/welcome/warm_reg_promo.cfm?c=45814

 

To the streets!

Dear Supporter:

Tonight, the President reminded Congress and the country that we need to finish health reform AND finish it right. He said, “Do not walk away from reform. Not now. Not when we are so close. Let us find a way to come together and finish the job for the American people.” He’s right.
And as we know, it takes more than words to pass health care reform. We have to fight. Harder than ever. Because that’s exactly what the insurance industry is doing. And if they win, we lose!
So we have to turn up the heat. For months we’ve called and written letters, knocked on doors and had meetings. Now we have to do even more.

We have to take to the streets. Click here to join us.

Right now their lobbyists are using their money and influence to block health care reform every step of the way. They’re trying to scare voters and get members of Congress to back down.

We have to dig down deep — everyone of us — to do more to win the health care reform we need.

Will you make a commitment to take action today? Click here.

Yesterday in Washington, DC, hundreds of people rallied for reform. We marched in front of the Chamber of Commerce because the insurance industry gave them tens of millions of dollars to kill health reform.1

We can’t let the insurance companies kill reform with their money! Not now. Not this time. We need Congress to stand up to insurance company lobbyists and finish health reform right.

That’s why we need to organize actions all over the country to demand that they finish reform and finish it now! Will you commit to attending an action in your area, spreading the word, or helping organize?

Click here to watch a video of yesterday’s protest action and sign up to take it to the streets!

We can’t let the insurance companies win. We can’t let them put people over profits any more. We can’t let them kill reform with their money and power.

We’re mobilizing people across the country to finish health reform now — and finish it right! Can you join us, tell your friends, or help organize? Click here.

There’s too much at stake to stop now. Every day that passes without health care reform:

• 6,821 people lose their health insurance2
• 2,548 people go bankrupt due to medical bills3
• and 123 people die because they can’t get the care they need4

Enough is enough!

The only way we’ll win reform is if we rise up as a nation and tell Congress to act now. Will you join us?

More details are coming soon, but we need to start organizing tonight! It’s time to finish the job.

To your health,
Levana Layendecker
Health Care for America Now

1. Breaking News: Insurance Industry Launders $10M to $20M in Attack Ads – NOW! blog
2. The Clock Is Ticking: More Americans Losing Health Coverage [pdf] – Families USA
3. Medical bills prompt more than 60 percent of U.S. bankruptcies – CNN
4.Study links 45,000 U.S. deaths to lack of insurance - Reuters

 

RWJF News Digest: Coverage

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		This frequently updated news digest on the subject of Coverage highlights key articles from major journals and news publications. The digest is a free service of the Robert Wood Johnson Foundation. After Obama Speech, Democrats Confused About Path Ahead Washington Post, Paul Kane and Shailagh Murray, 01/29/2010 A day after President Obama called on them to renew efforts to pass his ambitious agenda, congressional Democrats remained in disarray Thursday about how to move forward, with at least some pointing at the White House as the cause of the legislative standstill gripping Capitol Hill. Health Care Gives Way New York Times, Robert Pear and David Herszenhorn, 01/28/2010 President Obama drew sustained laughter from Congress, especially Democrats, on Wednesday when he declared in his State of the Union speech that “by now it should be fairly obvious that I didn’t take on health care because it was good politics.” Backroom Health Care Deals Fuel Voter Anger The Associated Press, Charles Babington, 01/27/2010 Special legislative favors, especially one designed to secure a Nebraska senator’s vote for the embattled health care package, ignited so much public outrage that President Barack Obama is calling them a mistake and House leaders say the bill can’t be resurrected unless such sweetheart deals are scrapped. Democrats Woo Snowe, Collins in Hope of Saving Health Reform Legislation The Hill, Alexander Bolton, 01/26/2010 Centrist Democratic senators have circumvented party leadership to approach Maine GOP Sens. Olympia Snowe and Susan Collins about reviving healthcare talks. Poll Shows Growing Fears on Health Care Overhaul Associated Press, Erica Werner, 01/26/2010 Fears about President Barack Obama’s health care overhaul increased significantly in December, according to a new poll released as the legislation’s future hangs in doubt. GOP Struggles for Consensus on Health Care NPR, Julie Rovner, 01/26/2010 Now that Democrats have lost their 60-vote, filibuster-proof majority in the Senate, Republicans have some ideas for how their stalled health overhaul can get started again: Find some bipartisanship. See other recent Coverage news digest stories on RWJF.org. You have received this e-mail alert because you have elected to receive information from the Robert Wood Johnson Foundation on: News Digest – Coverage.

 

Partners of Bleeders–Rap Session

https://www2.gotomeeting.com/register/418422691

Partners of Bleeders–Rap Session
Thursday, January 21, 2010 7:00 PM – 8:00 PM CST

Webinar Registration

Are you a partner to someone with a bleeding or platelet disorder? Would you like an opportunity to network with others in similar relationships to your own? Would you like support from others who know what it’s like to love someone with a bleeding or platelet disorder? Are you looking for information/education about bleeding/platelet disorders? Could you benefit from efforts to raise awareness about the realities of living and loving in the face of a bleeding or a platelet disorder? If you answered “YES”, please join us in this initial Rap Session for Partners of Bleeders. The discussion will include: –an open forum facilitated by people like YOU! –discussion about your needs and your desires –brief introductions to connect through shared experiences No obligation or commitment, just come check it out! Share your thoughts and questions via phone &/or web. We welcome all ideas and perspectives as we enter the planning phase of this exciting new group!

 

Dads in Action Webinar

https://www2.gotomeeting.com/register/118312979

Dads in Action Webinar: “Walking the Parenting Tightrope–Balancing Work & Family” Webinar Registration Become the kind of dad your children need you to be–a 24/7 Dad! HFA has partnered with the National Fatherhood Initiative (NFI) to bring you a unique, comprehensive fatherhood program. This session will focus on establishing a healthy balance between work and family. We will also discuss ways to get involved with your children, including helping them do well in school!

Register using the form on the right to reserve your Webinar seat.

 

Take Action Now to Eliminate Lifetime Caps

A message from Hemophilia Federation of America:

Eliminate Lifetime and Annual Caps Today

Take Action!

Health care reform is moving quickly in the negotiations between the Senate and House bill. The House bill language is much stronger and we need to ensure that lifetime caps and annual limits are eliminated. Please call your Senator today and ask them to support a “Dear Colleague” letter on lifetime caps. Tell your Senator to contact Senator Byron Dorgan’s office to add their name to the letter.

Next, call your Representative and have them sign onto the “Dear Colleague” letter being circulated by Congressman Kennedy and Congresswoman McMorris Rogers. They can contact Representative Kennedy’s office to be added to the letter. The deadline for this letter is the end of the day on Thursday, January 14th.

To find your Congress members’ numbers please visit the Legislative Action Center on HFA’s website or call the U.S. Capitol Switchboard at (202) 224-3121. We need to act fast to ensure that lifetime and annual caps are eliminated with Health care Reform.

 

Happy Holidays from the WFH – Joyeuses Fêtes de la part de la FMH – Felices Fiestas de parte de la FMH